The video aims to help the friends and family of ME/CFS (including Myalgic Encephalomyelitis (M.E.), Chronic Fatigue Syndrome (CFS), and Post Viral Fatigue Syndrome) sufferers understand the illness and what their loved ones are going through. To view a clearer, larger version of the video, visit: http://www.sleepydust.net/me-cfs-chronic-fatigue-syndrome-video.html
Duration : 0:9:18
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@lauragblueeyes …
@lauragblueeyes That sucks really. I’ve been going through the same phase for over 3 years. In 2008 I had 5 different jobs coz I couldn’t maintain them for long. I thought I was being lazy but I ended up learning that it’s chemical and not psychological. Try taking Jamieson’s Multivitamin Stress Ease. It’s over the counter drugs, it helped me.
I’m glad I came …
I’m glad I came across this video. It’s exactly like you described, running on a dead battery. The problem is even after a performing a certain task, it only gets harder the second time. I’ve been taking multi-vitamins from Jamiesons. It’s labeled Stress Ease. I highly recommend it for any one who goes through this.
I love this video
…
I love this video
so moving
could anyone tell me what the music is please?
X
I’ve had ME for …
I’ve had ME for years, yet I also have severe Astma and for the last, at least, 7 years every doctor has said to me “ah it’s just Astma”. I kept saying what was really stopping my days, all the symptoms that come with ME, but noone listened. Until last december I got a kind doctor to run alot of tests with me. Now I’m diagnosed with ME and yet still… my bf today said I professed to have this illness, that it was just depression and it was me not taking care of my body that caused this :’(
I have had cfs/me …
I have had cfs/me since november 1996. I first had glandular fever then post viral fatigue and then cfs. i was a fitness fanatic and very strong and would have described myself as masculine and physical in my very essence. I have had two serious cycles of the illness however i have recoverd to a point but am not the same man i was. I would like to say that yoga and progressive muscular relaxation helped me immensley and just to say try either of these as it might help. Regards to me sufferers.
Depressing but so …
Depressing but so so true-this is my life day in and day out- a living hell.
Thankyou for this intake of what our lifes are like, i have post this on my facebook profile,hopefully friends and family will see this and start to understand. xxx
hi i am 14 years …
hi i am 14 years old an i was searchiiing in the internet these strange feeling i had for 3 years by far and at first said nah come on i dont relly have this but unfourtunatley i have all the symptons my teachers call me lazy eventhough i work so hard but amalways tired i sleep for 10 hours wake up and still the same tired level idk wut to am failing 3 subjects by now
we saw this at …
we saw this at skool today, were doing an assembly about it because one of my bffs has it, she got it bad this time last year and has just started coming back into skool for a lesson a day ;-;
This is it, in a …
This is it, in a nut shell. I am fighting my employer and trying to hang on to what I have, with little if any understanding from others. I used to be a fit go getter who works in the City and cycled 60 miles a week and am now one of the people you describe in your video. Thanks you for the video and I hope it helps. Regards, Sam (London)
Brought me to tears …
Brought me to tears. It is hard to watch. That is my life being described. The loss was the worst, because I have lost everything mentioned. Because this disease is so devastating, helping others understand it is vital. Thank You!!
Excellent, i’m not …
Excellent, i’m not alone.. i used to be a fit agile strong and active engineer with masses of stamina… now cant even lift my small toolbox….somebody must be able to help me…..
Im feeling sleepy …
Im feeling sleepy the whole day, hmm, been happening for quite a few days already. I just feel soo sleepy when i wake up? Is it this virus im having? My body is prone to little muscle aches when i hardly exercise at all.
In part to that, My concentration has distrupted totally because i just keep feeling sleepy. I have re-occuring low grade fever, which i treat by drinking alot of water… DOES ANYONE FEEL THIS WAY LIKE I DO?
Hope is still there …
Hope is still there..May God give you the courage..
iv suffered with …
iv suffered with m.e for 16 years now and alot of people dont understand us. I cant work I had to gve up my nursing job wich shattered my dreams
i hope people find help watching these videos.
at least you can put in a video what we go through as i can never get people to understand what i go through and who alot of other people go through as well.
im 14 and i have …
im 14 and i have had chronic fatigue syndrome for over seven months now. i didnt know anything about the illness before i got it, but now i can sympathise with others who have it. i have missed a lot of school (which ultimately might take effect on the results of my GCSEs) and lost most of my friends (even though i didnt have many to start off with) but i dont care, im just trying to get better.
My friends did not …
My friends did not understand and kept teasing and mocking me, they did not relise how much it was hurting. i told them to watch this video and then look into my eyes and say that i’m faking it. It wasn’t thier fault, how can they be expected to understand, anyway thanks for making them open their eyes and relise that what i and many other people have is real and hurting.
This video is the …
This video is the best tool I know for giving family and friends an idea of what CFS feels like. It also highlights one of the most important aspects of the illness – social isolation and depression. I have been ill for three years. We need more information like this out there to inform the public about this poorly understood illness.
My life in 9 …
My life in 9 minutes & 16 seconds! Thankyou.
iv sufferd from M.E …
iv sufferd from M.E for 2 years now and this is such an amazing video,the music realy goes with it…thankuu so much for making this xxx
When I first got …
When I first got the disease I was not able to walk for 5 minutes. I almost slept all day and only came out for food. I had headaches, and oh so many muscle aches. You know what muscles are when you feel this.
I’ve had cognitive behavioral therapy with physical training. Currently using extra vitamine b12 (intramusculair injections) , multivitamines and folic acid. I highly recommend it.
God bless all of …
God bless all of you. Do your medical tests show nothing? Liver, thyroid, anything?
I hope that one day you’ll all be freed to live healthy lives. And may those around you give you the love and understanding we all need.
Great reminder.
I …
Great reminder.
I don’t, nor any of the people I know have this kind of illness, but I can immagine how it must be to be exchaused all the time…. I know how horrible borring / unsocial you feel when your not out with friends because your tired.. beeing like that each day would be a nightmare..
I’ll add this to my favorites, might not be much, but maybe someone by a chance comes across the video and “opens” their eyes. 1 here, 1 there, it’s all that matters.
Thanks for remind us others…
I used to be an …
I used to be an extremely optimistic and energetic 7 year old. Then i caught some really strange virus. I was hospitalized for 3 months with mono-like symptoms. I was never the same. I show ALL of the said symptoms. I almost certain it’s post-viral fatigue. Thanks for the vid. At least i’m not alone.
such a perfect …
such a perfect video, thankyou X
i cannot thank you …
i cannot thank you enough! The tears i have shed during this video have enlightened me to get as many friends and family to watch this! I am lacking so badly in support, i feel i can’t go on like this, but with your help and this fantastic video, my hope has been reignited. Many many many kind thanks to you for taking the time to create this! For all other sufferers, you have my love and respect. For all those who know someone who suffers and supports them, thank you from the bottom of my heart!